How to help adults living with fetal alcohol spectrum disorder

How to help adults living with fetal alcohol spectrum disorder

The fetal alcohol spectrum disorder (FASD) is a collection of issues caused by pregnant women having alcohol. These issues affect babies and can’t be cured. Permanent damage can, however, be kept under control with the right treatment, assuming that FASD is diagnosed early.

With this thought in mind, here’s how adults living with FASD can benefit from a higher quality of life.

Support with the Environment

Regardless of what kind of brain damage the adult has, the environment plays an extremely important role in the process. Based on most FASD training courses out there, the environment must feature a positive approach.

Fast-paced environments will only confuse adults living with FASD. Instead, everything must be slow-paced. The same applies to loud environments, so adults in this situation require a quiet setting.

As for the community around them, it should be all about positivity and celebration. Despite living with FASD, adults still have strengths and pluses. Celebrating these qualities will add to the positive profile of the environment.

Furthermore, in terms of structure, it’s important for people offering support to establish some routines. People living with FASD need to have a routine. They must be able to predict their days, without any unexpected surprises that can trigger unpleasant reactions.

Sometimes, even if they’re positive, these surprises can still trigger unwanted reactions. Not just creating a supportive environment but it’s equally important to be flexible enough to adjust routines when necessary, to accommodate individual needs and prevent frustration.

Communication Is Critical

Communication Is Critical

Adults struggling with FASD require crystal-clear communication. The more comprehensive and sophisticated it is, the more issues it can cause. Instead, these adults require simple and straightforward communication.

A long explanation will most likely cause confusion, but it will also be difficult to understand. Arguments are just as harmful, hence the necessity of keeping things simple.

Although a patient’s behavior may not always be desired, the truth is people dealing with these adults must practice nonjudgmental support. It’s not their fault, so there should be no assumptions whatsoever. Most of the issues are created by brain damage caused by alcohol exposure before birth.

Apart from verbal communication, body language is critical too. Plus, the tone must be low and friendly. Even if someone in particular is friendly, a loud form of communication can be perceived aggressively.

All in all, keeping things calm and friendly (and with friendly body language) will make things easier to understand.

Adults dealing with FASD face different problems, as the issue affects people differently. Therefore, communication requires plenty of patience. Besides, flexibility is required due to the patient’s changing nature.

Social Support

If you’re someone struggling with FASD, it’s important to surround yourself with people who are aware of your problem. Social support is extremely important in the treatment. Besides, you need to focus on your own hobbies, interests and passions.

Each individual suffering from FASD has some strengths. Focusing on these strengths will help with self-confidence, let alone the sense of self. Positivity is the keyword here. Encouragement from family, friends, and caregivers plays a vital role in reinforcing these strengths.

Community involvement plays a significant role in the process as well. People living with FASD must find work in any form. Even volunteer work is great because it helps them interact with others and develop new skills.

Any sort of social activity will help, so different groups will be just as useful. There might be local groups for adults struggling with FASD, for example. There could be church groups too.

In fact, FASD support groups are extremely common today and will work wonders in the long run. While patients experience different issues, some of them will be common. It’s important to learn from others’ experiences, but also to share personal perspectives for a better understanding.

Even if there aren’t any groups nearby, there are certainly plenty of online support groups that offer the same type of interactions. These online communities also provide a safe space to connect and exchange valuable advice.

Professional Support

Professional Support

Last, but not least, professional support should be taken from people who actually know what they’re doing.

There are lots of organizations that can offer resources to understand FASD, let alone different forms of support for adults living with it. Support groups aren’t all about people dealing with FASD, but they often include professionals who can offer qualified advice as well.

Many organizations provide comprehensive services, including assessment, diagnosis, intervention programs, counseling, and caregiver training, to help manage the multifaceted needs of adults with FASD.

It’s important to understand that expecting full independence is quite difficult, yet it depends on the patient. Instead, professionals recommend fostering mutual reliance. Adults living with FASD and their caregivers or specialists should support each other in a unique manner.

The good news is that professional support is available both in-person and online. However, since symptoms and problems vary from one individual to another, professional support must be deeply customized.

As a short final conclusion, FASD can be considered a disability. It’s a lifelong issue that will affect adults for the rest of their lives. It’s mainly related to the brain, so it’s critical to adopt an understanding approach.

Although it may seem difficult to live with it, the truth is that early diagnosis and proper support can seriously add to the patient’s quality of life.